NAD Town Hall Meeting-new location!!! Tonight (April 4, Friday)

Download PDF Flyer at: http://phplist.cdrnys.org//dl.php?id=50

NEW LOCATION!

Join us at RSD!

NAD Town Hall Meeting

Friday, April 4, 2014

7:00pm

Rochester School for the Deaf

1545 St. Paul St, Rochester, NY 14621

Want to know more about captioning rights, technology access, saving Deaf schools, etc?

Come and join the NAD Board to find out more about what NAD is doing for YOU!

Event is hosted by ESAD and RSD

Refreshments will be provided!

www.nad.org

For more info, please contact:

Steve Lovi, NAD Region I Board Member

steve.lovi@nad.org

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Please sponsor for FUN*RUN! Pretty Please!!!

On May 4 at Washington DC, I will be walking and jogging maximum 25 laps for the FUN*RUN event that will use these funds to help disabilities who lack the funds needed to meet with their legislatives face to face.  These people’s thoughts and feelings are often missed because they don’t have the funds to show the world their dreams.  Let’s make sure that the Federal Legislatives hear all views before passing legislatives laws.

The two ways for you to sponsor me, one way is by mailing the attached PDF document letter directly to Texas, please don’t forget to put my name in the first page because I am represent all deaf and hard of hearing people.  In case my name is spelled as Dean DeRusso. Also, leave a Personal Note that says, “This is for Rochester group”  If the document is not attached, you can download it by the below link:
http://phplist.cdrnys.org//dl.php?id=49

Or you do it easier by paying online at below link:
http://www.adaptfunrun.net/runner/message/36

Any support will be greatly appreciated.  If you have questions please feel free to call, email or contact me at below information.   Also, please let me know you sponsored so I will be able to thank you as well!

If you would like to forward this to people who you know might be interested, please do so, remember it’s TAX DEDUCTIBLE!

Sincerely,Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)

 

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Action Alert: Tell the Civil Rights Summit Organizers to include People With Disabilities

Civil Rights Act Celebration Ignores People With Disabilities 

To take action, please click on below link:
http://bit.ly/1fg8QlT

Tell the LBJ Foundation to include PWD’s 
On July 26, 2015 we will be celebrating the 25th anniversary of the signing of the Americans with Disabilities Act by George H W Bush.  The ADA is considered the civil rights legislation for the 52 million people with disabilities living in the US.  During the signing ceremony, President Bush said “…tear down these walls of discrimination…”
Even though the disability rights movement goes back 5 decades it is frequently ignored by the traditional civil rights community.
It is particularly unfortunate that the celebration of the 50th annivery of the Civil Rights Act of 1964 in Austin next week has no recognition of the ADA nor the role Texans like Justin Dart Jr., Lex Frieden, Peg Nosek, Marilyn Golden, Stephanie Thomas and President George H W Bush played in its passage.
The story of the integration of people with disabilities into every facet of our communities, is a story of civil and human rights that has included political and legal action as well as civil disobedience.
Contact the organizers of the LBJ Summit and tell them to recognize the achievements of the disability rights movement, the ADA and include disability rights advocates at the Summit.
To take action, please click on below link:
http://bit.ly/1fg8QlT
Thank you,
Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)
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Action Alert: please call to push amending NPA

People with disabilities have now occupied the NYS Nurses Association

office for 117 hours. The union opposes amending the Nurse Practice
Act which would allow attendants to perform health related tasks. By
allowing advanced home health aides to assist people, NYS will be able
to implement the Community First Choice Option. This Medicaid State
Plan Option would assure that people who are eligible for
institutional placement would be able to access services and supports
to live in the community. Significant federal funding comes with this
option. After days of negotiation, rather than accepting our language,
the Nurses Association created language that contradicts NPA.

PLEASE call

Assembly Member Weprin, the Chair of the Task Force on People with
Disabilities: 518-455-5806
Assembly Member Cahill: 518-455-4436
Speaker Silver: 518-455-3791

Ask them to speak for us in the deliberations over amending the NPA.

We are not union lobbyists or lawyers. We are not legislators or
government officials. We are people with disabilities who want to
secure our civil right to live in freedom in the community. This
battle is more than 24 years old and we do not want to be forced into
institutions any longer.

Thank you,

Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)

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Background from Yesterday’s Action Alert

Last night, the Advocacy Department was asked for some additional background information on yesterday’s action alert. I thought it would be good to share it with everyone. If you still haven’t done the action, there is no time to lose! The link to the alert is at the bottom of this. And please feel free to share it with your online contacts. Thanks!

Dave Atias
Advocacy Department Supervisor

Background

• The Disability Community has been fighting to create an alternative to institutional placement for nearly 24 years. Although we have not been able to end the institutional bias at the national level, we created a new state plan option called the Community First Choice (CFC) Option. CFC creates a new mechanism for states to provide community-based attendant services and supports for people with disabilities, regardless of age or disability. Once selected, this new option changes state Medicaid policy so every person who meets the level of care for institutional placement in a nursing facility, intermediate care facility or institution for mental disease has the right to live and receive services and supports in the community.

• CFC requires states to provide assistance with Activities of Daily Living (ADLs), Instrumental Activities of Daily Living (IADLs) and health related tasks (like medication administration, tube feeding, and vent care) to assure that people have the services and supports they need to live in the community.

• Although New York State has an Nurse Practice Act (NPA) exemption for its consumer-directed program, it needs to amend the NPA to allow attendants under a more traditional agency model to provide assistance with health related tasks with training and supervision from a nurse.

Impact of Not Securing the NPA Amendment

• New York won’t be able to broadly implement CFC and people with all types of disabilities – whether or not they need assistance with health-related tasks – won’t have a right to receive services and supports in the community.

• People with dementia – who currently have extremely limited community-based options in New York – will continue to be forced into nursing facilities.

• Families of individuals with developmental disabilities who would have received services and supports under CFC will continue to languish on waiting lists for assistance.

• People with mental health disabilities won’t receive CFC services and supports needed to be successful in living independently and will continue to remain in – or cycle in and out of – expensive institutional settings.

• New York State won’t generate approximately $340 million dollars a year in extra federal funds from the enhanced federal funding associated with CFC.

Political Situation

• Governor Cuomo included language in his budget bills to authorize implementing the Community First Choice Option, amending the Nurse Practice Act, and creating a workgroup of all interested parties to develop the specific operational decisions. When his administration became aware that the published language needed to be revised to implement CFC, they agreed to support a slightly modified proposal.

• The NYS Senate incorporated the modified NPA amendment language in its budget resolution.

• The NYS Assembly, however, failed to make the needed changes. Assemblywoman Glick – who chairs the Assembly Higher Education Committee which is responsible for – won’t support the amending the NPA because the language doesn’t define specifically which tasks attendants will be able to perform and what education, training and supervision will be required. She has not identified any alternative language which would allow the state to implement CFC and end the institutional bias

What YOU Can Do!

Contact Assemblywoman Deborah Glick and urge her to support the right of New Yorkers with disabilities to live in the community and not be forced into institutions by supporting the Senate language amending the Nurse Practice Act as part of the state budget negotiations or working with the Disability Community to craft improved language. Budget negotiation in New York are underway, so she needs to hear from you ASAP!

Albany office: 518-455-4841

NYC District office: 212-674-5153

Email: Glickd@assembly.state.ny.us<mailto:Glickd@assembly.state.ny.us>

Twitter: @DeborahJGlick

Circulate the CDR CapWiz Alert:

http://capwiz.com/rochestercdr/issues/alert/?alertid=63145221 

Thank you,
Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)
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Action Alert: ONE PERSON is standing in the way of the freedom of thousands of New Yorkers with disabilities

ONE PERSON is standing in the way of the freedom of thousands of New Yorkers with disabilities

Contact Assemblywoman Glick NOW!

http://capwiz.com/rochestercdr/issues/alert/?alertid=63145131

After nearly 24 years of advocacy, we are now engaged in a state-by-state campaign designed to give people with disabilities of all ages the opportunity to live in the community, rather than be forced into unwanted and unnecessary institutional placement, and New York State is on the verge of making this change.

Governor Cuomo included language in his budget bills to amend the Nurse Practice Act and implement the Community First Choice Option. When the administration became aware that the published language needed to be revised, they agreed to support a modified proposal. The NYS Senate included modified language in its budget resolution implementing this change. The NYS Assembly, however, failed to make the needed changes. Advocates have been told that such language was blocked by Assemblywoman Glick who chairs the Assembly Higher Education Committee.

That means ONE PERSON is standing in the way of the freedom of thousands of people with disabilities – Assemblywoman Deborah Glick.

Many people in the Disability Community in New York have been stunned by the Assemblywoman’s lack of support for our civil rights. Glick – the first openly lesbian or gay member of the New York State legislature – has championed other civil rights issues including passage of the Sexual Orientation Non-Discrimination Act (SONDA). Disability Rights advocates can’t believe that she would stand in the way of another oppressed community’s civil and human rights

Assemblywoman Glick – and the Assembly leadership – need to hear from us now!

TAKE ACTION below!
http://capwiz.com/rochestercdr/issues/alert/?alertid=63145131

[For more information on this issue, you can go to: http://ly.adapt.org/glick]

Thank you,Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)

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Join the New York Disability Vote Network!

Join the New York Disability Vote Network!
Make sure your concerns are recognized!

Last year, Center for Disability Rights (CDR) started a project known as the New York Disability Vote Network (NYDVN) with the goal of building and unifying a solid network of voters with disabilities in New York State. Last month, the NYDVN website with 30 working partner organizations focused on inviting many of their customers to join the network.  At this moment, CDR is NOW asking you to become a part of this expanding network by visiting the website (http://www.nydvn.org).
NYDVN Logo

Joining is easy!!! All you have to do is fill out the online application (http://nydvn.org/individual-signup) and click “Sign Up”. Your information will be added to our database and NYDVN will contact you periodically about pressing voting issues that are preventing individual rights to their integration, communication and access needs in the community.  Picture this, all of us working TOGETHER to push for positive changes on a state level.  This picture is big for sure!!

To read more about NYDVN website launch, please check out the press release.(http://cdrnys.org/index.php?option=com_content&view=article&id=773:ny-voters-disabilities&catid=17:blogs-recent)

For further questions, concerns or thoughts? Please email jthurber@cdrnys.org.

Thank you,

Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)

 

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Join Us To Commemorate The Lives of Disabled Filicide Victims

Rochester Area Disability Community Commemorates Lives of Disabled Filicide Victims, for More Info click here!

Join Us This Saturday at 1pm

Rochester Area Disability Community Commemorates Lives of Disabled Filicide Victims

As part of a nation-wide Day of Mourning, disability rights advocates in the Rochester area will be holding a vigil Saturday, March 1, 2013 to honor the lives of disabled people murdered by their families and caregivers.

Over 40 such murders have been reported in the United States in the last five years, ten in the last year alone. In the year since our last Day of Mourning, our national disability community has lost at least ten more victims. In January of 2014 alone, two more people with disabilities were lost in murder-suicides at the hands of their parents: Damien Veraghen, age nine, and Vincent Phan, age twenty four.  The total number of killings is likely higher than the number reported in news media. In addition, this count does not include elder homicides which which often involve elders who also have disabilities.

In a horrifying trend, parents and caregivers, those whom one should be able to trust most, are committing murder against people with disabilities in their care.  We must address violence against people with disabilities and speak out against the dangerous cultural prejudice that says a disabled life is not worth living.

The Autistic Self-Advocacy Network, Not Dead Yet, and the National Council on Independent Living held the first Day of Mourning in 2012 as a response to the murder of George Hodgins, a 22-year-old autistic man from California, by his mother. The Day of Mourning is a national event, with 15 – 20 participating cities each year.

Little public attention is paid to the disabled victims of these violent acts. Media coverage and public discourse about such killings frequently seems to justify them as “understandable” and sometimes “merciful,” rather than appropriately condemning these crimes and those who commit them. The National Day of Mourning is a time for the disability community to commemorate the many lives cut short. By honoring disabled victims of murder and celebrating the lives that they lived, these events send a message that disability is not a justification for violence.

The Rochester vigil will be held at the Center for Disability Rights at 497 State Street, and begins at 1:00 p.m. Speakers will include Diane Coleman and Stephen Drake of the national disability rights organization Not Dead Yet, which is headquartered in Rochester and a co-sponsor of the national Day of Mourning effort.

Autistic Self-Advocacy Network (ASAN) is an inclusive international non-profit organization run by and for autistic people. ASAN seeks to advance the vision of the disability rights movement in the world of autism. Drawing on the principles of the cross-disability community on issues such as inclusive education and community living, ASAN focuses on organizing the community of autistic adults and youth to have our voices heard in the national conversation about us. In addition, ASAN works to advance the idea of neurological diversity by furthering the view that the goal of autism advocacy should not be to create a world without autistic people. Instead, it should be to create a world in which autistic people enjoy the same access, rights, and opportunities as all other citizens.

Not Dead Yet is a national, grassroots disability rights group that opposes legalization of assisted suicide and euthanasia as deadly forms of discrimination against old, ill and disabled people. Not Dead Yet helps organize and articulate opposition to these practices based on secular social justice arguments. Not Dead Yet demands the equal protection of the law for the targets of so-called “mercy killing” whose lives are seen as worthless.

The National Council on Independent Living is the longest-running national cross-disability, grassroots organization run by and for people with disabilities. Founded in 1982, NCIL represents thousands of organizations and individuals including: Centers for Independent Living (CILs), Statewide Independent Living Councils (SILCs), individuals with disabilities, and other organizations that advocate for the human and civil rights of people with disabilities throughout the United States.

Link can be found below:
capwiz.com/rochestercdr/utr/1/AZWVTRMJPX/EPVPTRMJTI/10205089816

Thank you,Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)
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Fundraiser to support our SSP services!

Rochester Deaf Rotary’s wine tasting event is less than a week away!  In case you do not know, this is a fundraiser that will support Rochester’s Deaf-Blind community’s needs for the SSP services!  If you would like to go for fun or support the deaf-blind community, please DO NOT forget to call and sign up/reserve your tickets if you plan to attend this event. I have attached the flyer again in case you missed it, or would like to distribute to friends and family! Thanks!!  =) =)  Hope to see you there!!!

Thank you,
Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)
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Thursday Meeting with Assemblyman Joe Morelle! 3:15pm

Hi Everyone,

In case you haven’t heard, thanks to our quick-hitting direct action last week, we have a meeting on Thursday, February 6th at CDR (497 State Street) at 3:15pm with Assemblyman and Majority Leader Joseph Morelle.

We’re going to be “asking” the Assemblyman to push for an amendment to the NYS Executive Budget that would pay for the impending overtime pay increases for certain home health care attendants that are coming due to the US Department of Labor’s recent rule changes. (To refresh yourself on THAT issue, visit www.DOLOffMyBody.org.)

These changes will result in people with disabilities who are now independent being put into institutions! The DOL has admitted this!

We’re working on getting as many CDPAS consumers and attendants to this meeting as this will directly affect them in a big way. But we also need to pack the room in general – especially if the Assemblyman is your representative. So, if you can, please make arrangements to join us on Thursday at 3:15pm at CDR. Thanks!!!

[Also: once this is over, we'll be letting you know about an all-day, bus trip to Albany on February 25th. Details are coming but save the date.]

Thank you,

Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living (RCIL)

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